VISION IMPAIRMENT IN CHILDREN AND THE IMPACT ON CHILDREN AND THEIR FAMILIES
With
Dr Susan Silveira
Chief Investigator
Australian Childhood Vision Impairment Register, NextSense &
Program Director
Master of Disability Studies (Macquarie University),
NextSense, Sydney, Australia
RESEARCHER PROFILE
Filmed in Sydney | June 2025
Sue is a qualified paediatric orthoptist who has held both clinical and academic roles. She has a Master of Health Sciences (Education) from the University of Sydney, and a PhD from the University of Newcastle.
Sue holds a conjoint academic position with Macquarie University and is the Course Director for their Master of Disability Studies, which is administered and delivered by NextSense Institute in affiliation with the University. She teaches in the areas of vision impairment and disability, and aims to share her knowledge while learning from others, especially people who are blind or have low vision and their families.
A research fellow with NextSense Institute, Sue is the chief investigator on a collaborative partnership project that established the Australian Childhood Vision Impairment Register, which captures data to help improve services for children who are blind or have low vision. She is also a co-investigator on a project that aims to raise awareness about when and why braille should be introduced in a child’s life, and is working as part of a research team developing accessible playgrounds.
Sue has worked extensively in the NSW public hospital system and in vision screening programs, and has held an academic position with the University of Sydney’s School of Orthoptics, in addition to working at The Children’s Hospital at Westmead—the largest paediatric centre in NSW.
Through her research, Sue aims to give a voice to people who are blind or have low vision, and to broadly improve their quality of life.
Outside of work, she prioritises her family and tries to spend time on her loved pastime–drawing.
Source: Supplied
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Understanding the experience of pain for novel brain-based treatments
Associate Professor Tasha Stanton leads the Persistent Pain Research Group at SAHMRI. She is also co-Director of IIMPACT in Health at the University of South Australia, Adelaide. She is a clinical pain neuroscientist, with original training as a physiotherapist, and her research focusses on pain – why do we have it and why doesn’t it go away?
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Biostatistics in Clinical Trials
As a biostatistician working in research and clinical settings, Kate Francis plays a vital role in ensuring all projects adhere to best practice guidelines and are transparently reported. She has served as the lead statistician for the analysis of clinical trials across a broad range of subject areas, including neonatal resuscitation, BCG for allergy and infection, convulsive status epilepticus and her work has been published in the top journals such as The New England Journal of Medicine, JAMA, and The Lancet. Most recently she was awarded the 2025 Excellence in Trial Statistics Award for her work on the PLUSS trial.
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Digital Biomarkers and AI for Optimal Diagnosis, Treatment, and Decision-Making
Associate Professor Johan Verjans is a clinician-scientist with a strong focus on cross-disciplinary translational research. In his role as Deputy Director at the Australian Institute for Machine Learning (AIML)—one of the world’s premier machine learning institutes, with over 200 researchers—and as Group Leader of Artificial Intelligence at the South Australian Health and Medical Research Institute (SAHMRI), he integrates his expertise in molecular medicine, clinical research, and advanced imaging with machine learning applications. This unique combination enables him to drive the translation of cutting-edge AI research into practical medical applications. He works with global teams from multinationals on AI problems.
