VISION IMPAIRMENT IN CHILDREN AND THE IMPACT ON CHILDREN AND THEIR FAMILIES
With
Dr Susan Silveira
Chief Investigator
Australian Childhood Vision Impairment Register, NextSense &
Program Director
Master of Disability Studies (Macquarie University),
NextSense, Sydney, Australia
RESEARCHER PROFILE
Filmed in Sydney | June 2025
Sue is a qualified paediatric orthoptist who has held both clinical and academic roles. She has a Master of Health Sciences (Education) from the University of Sydney, and a PhD from the University of Newcastle.
Sue holds a conjoint academic position with Macquarie University and is the Course Director for their Master of Disability Studies, which is administered and delivered by NextSense Institute in affiliation with the University. She teaches in the areas of vision impairment and disability, and aims to share her knowledge while learning from others, especially people who are blind or have low vision and their families.
A research fellow with NextSense Institute, Sue is the chief investigator on a collaborative partnership project that established the Australian Childhood Vision Impairment Register, which captures data to help improve services for children who are blind or have low vision. She is also a co-investigator on a project that aims to raise awareness about when and why braille should be introduced in a child’s life, and is working as part of a research team developing accessible playgrounds.
Sue has worked extensively in the NSW public hospital system and in vision screening programs, and has held an academic position with the University of Sydney’s School of Orthoptics, in addition to working at The Children’s Hospital at Westmead—the largest paediatric centre in NSW.
Through her research, Sue aims to give a voice to people who are blind or have low vision, and to broadly improve their quality of life.
Outside of work, she prioritises her family and tries to spend time on her loved pastime–drawing.
Source: Supplied
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Muscle Cell Communication and Repair
Dr. William Roman is a Group Leader at the Australian Regenerative Medicine Institute (ARMI) at Monash University. He obtained his PhD from Paris Descartes University and Freie University of Berlin, focusing on nuclear positioning during skeletal muscle development. Dr. Roman’s research journey has taken him across the globe, including postdoctoral work in Barcelona, tissue engineering in Lisbon, and a brief stint at Stanford University.
At ARMI, Dr. Roman leads innovative research on intercellular communication within muscle organs. His work involves growing human muscles on chips to understand how skeletal muscle cells interact with neurons and tendons. This research aims to develop better models for studying muscle diseases, drug screening, and even applications in cellular agriculture and biorobotics.
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Cellular mechanisms of traumatic brain injury & concussion
Professor Melinda Fitzgerald is Deputy Vice Chancellor, Research at Curtin University, John Curtin Distinguished Professor and CEO of Connectivity Traumatic Brain Injury Australia.
She has published over 135 papers; recent highlights include Lancet Neurology, J Neuroscience, Nature Nano, ACS Nano, Biomaterials. Currently held grants/Projects total $10.1 million; CIA for $5.2 million of these; $18.5 million total research and equipment funding, $9.9 million as CIA; continuous category 1 grant funding as CIA since 2009.
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Hormone receptor positive breast cancer and therapy resistance
Prof Elgene Lim is a medical oncologist at St Vincent’s Hospital and Head of the Connie Johnson Breast Cancer Research Lab at the Garvan Institute. Following his PhD at the Walter & Eliza Hall Institute where he identified the aberrant cells in carriers of the BRCA1 mutant gene, a hereditary breast cancer syndrome as the culprit cells giving rise to breast cancer, he furthered his research and clinical training at the Dana-Farber Cancer Institute and Harvard Medical School. He was awarded the National Breast Cancer Foundation Practitioner Fellowship in 2014 and returned from Boston to Australia. In 2017, he was awarded the inaugural National Breast Cancer Foundation Endowed Chair, and subsequently appointed the Principal Cancer Theme Lead at UNSW.
